Wednesday, April 27, 2011

MILES (update)

Miles has done a lot of testing and evaluations in the last 3 months.

He is either in Speech, Physical or Occupational Therapy 5 days a week.
He works so hard and we are so proud of him.

It's a lot, but it's necessary.

We received his approval to start Developmental Therapy, but we are putting that on hold until we can get him on somewhat of a normal schedule.
Mainly, because this happens everyday...

At Miles' 21 month check-up, his Pediatrician referred us to a Neurodevelopmental Pediatrician and a Pediatric Neuropsychologist. We were able to meet with them for over 2 hours and left very encouraged.

The one thing we have to factor into every equation with Miles is the first 8 months of his life... and before.

The unknowns.

Things like prenatal care, delivery, nutrition, illnesses, etc.
Some things we know, most we don't.
Which makes trying to figure out neurological stuff more difficult.

They said besides his sensory issues, he may be dealing with some possible attachment issues. So, we have contacted an Attachment Counselor for an assessment. Since Miles is difficult to engage, makes such poor eye contact, and has serious social issues, that can make attaching a little difficult. Even though he seems to be bonding just fine, we want to make sure we have the tools necessary to help him continue to form a strong, healthy bond with us.

They want to do an MRI to further rule out neurological issues, and blood work to do some muscle enzyme testing. But, they are going to give us time to see how he does in therapy before going that route.

If you don't spend time with Miles everyday, you probably wouldn't notice the progress he's making. But we see it. He still has a long way to go, but we love celebrating the little things he is doing.

His girls at Children's Therapy T.E.A.M- Kara, Melissa, Holly, Tabitha (and occasionally Julie and Cindy)- are so good with him and we are so thankful for all their hard work and patience.

After our assessment with the Attachment Counselor and Miles' up coming eye appointment, he will be DONE with all his testing and evaluation appointments.

We are continually reminded that even though there are many details of Miles' first 8 months are unknown to us, they are absolutely not unknown to God. He made Miles wonderfully and perfectly and we are so thankful for that!


"You made all the delicate,
inner parts of my body and knit me together in my mother’s womb.
Thank you for making me so wonderfully complex
Your workmanship is marvelous—how well I know it.
You watched me as I was being formed in utter seclusion,
as I was woven together in the dark of the womb.
You saw me before I was born.
Every day of my life was recorded in your book.
Every moment was laid out before a single day had passed.
How precious are your thoughts about me, O God.
They cannot be numbered!
I can’t even count them; they outnumber the grains of san
And when I wake up, you are still with me!"

{Psalm 139:13-18}

1 comment :

  1. We will be praying for sweet Miles. So glad to hear that he is making progress.