Wednesday, March 16, 2011

FIELD TRIP

Alex's 5th grade class went on a field trip yesterday to the State Capital in Little Rock. He was excited about going, but not excited about leaving the school at 6:45 AM.

They were told to bring a sack lunch and 2 snacks.
One for the trip there and one for the trip back.

When we picked him up last night at 6:00 PM he was starving.
I asked him about his snacks, and he said he ate them all by lunch.
Then he started laughing and told me he that actually, he ate all but one.

The Swiss Roll.

He was saving it for the trip home, but he didn't get to eat it because someone accidentally sat on it and smooshed it.
And apparently it was hilarious.

I was all ready to hear all about the Capitol, the people he meet, his day in Little Rock, but the only thing we could get out of him was the story of the smooshed Swiss Roll.

11 year old boys are so funny.
I don't think I will ever understand them.

Shiloh 5th graders with Lt. Governor Mark Darr

Mrs. Ead's 5th grade class with Senator Bill Pritchard

Mrs. Ead's 5th grade class with State Representative Jon Woods

Wednesday, March 9, 2011

QUICK UPDATE ON MILES

The Developmental Therapist that evaluated Miles last week was awesome! She asked a lot of great questions, made a lot of great observations, and really tried to get a complete picture of where Miles is from a developmental standpoint. We were told that the parents are not usually told if their children qualify for therapy at the first meeting because the results need to be figured to get a standardized score, and that number determines if they qualify for therapy. But, after she spent the morning with Miles, she told me that she is approving him for Developmental Therapy no matter what his scores are because "he desperately needs it."

I was glad that she saw what we are seeing, but I hate it for him.
He loves going to therapy, he is just having a hard time adjusting to the new routine.

Right now, he is doing four and a half hours of therapy a week and it wipes him out. He falls asleep during lunch just about everyday. It has totally messed his naps up because he still wants to take two naps a day, which is just not possible anymore because of therapy. We aren't in a place right now to help him adjust to a new schedule because, in the next couple of weeks, his therapy will go up to about eight hours a week. So, hopefully after we add his Physical Therapy and Developmental Therapy, we will be able to help him get adjusted.

Miles had a hearing test yesterday morning. The purpose of the test is to rule out any hearing issues as a reason for his speech delay/regression. The Audiologist did a series of tests and Miles did really good until she tried to use the ear plugs. He hated having the ear plugs in his ears and figured out that if he shook his head just right, they would fall right out. Slowly but surely, we were able to get enough tests done and we were told that his hearing was just fine. Thank you Jesus!

God has opened door after door for us since we started this journey.
It has been quiet amazing.
Our 3 month wait to start therapy evaluations turned into 3 weeks.
Our 2 month wait for OT turned into 1 week.
And just yesterday, our 4-6 month wait to get in to see the Neurodevelopmental Pediatrician and the Pediatric Neruopsychologist turned into 2 weeks. 2 WEEKS.

God has been so gracious to us.
Adoption makes you an expert in the area of 'waiting.'
I'm just grateful that He isn't making us wait to long this time.

Tuesday, March 8, 2011

HE MAKES ME LAUGH

The video baby monitor may be the best invention EVER!
I seriously don't know how I survived without it when Alex was little.
It is, by far, my favorite baby thing!

Without it, I would never get to see things like this...

Miles spends most of his day upside down.
It's a sensory thing.
And it's hilarious.

(I'm not saying that his sensory issues are hilarious, but he does some pretty odd stuff and we've learned that we don't find some humor in his quirks, we will go completely crazy.)

When Miles goes down for a nap, he spends about 30 minutes either doing head stands, or walking back and forth in the bed bumping into the sides and falling over. When he's walking around, his blanket is either over his head so he can't see where he's going, or it's hanging over the rail and every few minutes he stops to readjust them.

It's actually very entertaining.

The other day, I could hear him laughing in his room, so I went and turned the monitor on to see what he was doing.

Nothing.
And apparently nothing is very funny.

Wednesday, March 2, 2011

Treasuring & Trusting God's Word

"In the beginning was the Word, and the Word was with God,
and the Word was God."
{John 1:1}
"For the Word that God speaks is alive and full of power, making it active, operative, energizing, and effective; it is sharper than any two-edged sword, penetrating to the diving line of the breath of life and spirit, and of the joints and marrow, of the deepest parts of our nature, exposing and sifting and analyzing and judging the very thoughts and purposes of the heart."
{Hebrews 4:12}
After watching this video, I had to do some serious confessing.

I mean, if I believe the Word IS God, and that it is ALIVE and FULL OF POWER, than why do I take it for granted? Why don't I spend more time reading it? Studying it? Memorizing it?

Why do I sometimes doubt verses like this one...

"And we know that God causes all things work together for the good for
those who love God and are called according to his purpose for them."
{Romans 8:28}

I want my boys to fall in love with God's Word.
To treasure it.
To live by it.
To give their lives to it.
And if need be, for it.

But it has to start with me.

As we walk this unfamiliar path with Miles, I am completely trusting God's Word and God's plan. Miles was fearfully and wonderfully made. Designed and created by God Himself!

Our doctor's appointment today didn't go completely as we had hoped.
We are being referred to a Neurodevelopmental Pediatrician.

The word Autism was used today. Out loud.
We knew it was a possibility. The red flags are there.
But, it will be quite awhile before we will know anything.
Lots of testing and evaluating still to be done.
And he's still so young.

So now it's a waiting game.
Waiting to get in to see the specialist.
Waiting to see how he continues to develop.
Waiting to see if he makes any progress in therapy.

Miles has an evaluation tomorrow with the Developmental Therapist and next week he will have some hearing testing done to rule out any issues there.

I am so thankful for the people God has surrounded us with that are working on our behalf to help Miles get the help, testing & evaluations he needs. I'm not sure there is anything more special than perfect strangers coming along side you for the soul purpose of helping your children be all that God designed them to be.